More Support - Amyloidosis Support Groups & Organizations
Here you can find TTR-FAP information for you, your loved ones, and your family members.
Helpful groups and organizations
The organizations listed below provide information and support for people with TTR-FAP and their loved ones and family members.
Pfizer is providing these links to external Web sites as a resource to our visitors and is not responsible for site content. We hope that they will help you learn more about the disease.
Association Française contre l'Amylose
La Società Italiana per l'Amiloidosi
Groningen Unit for Amyloidosis Research & Development (GUARD)
www.amyloid.nl (Netherlands—in English and Dutch)
Associação Portuguesa de Paramiloidose
National Amyloidosis Centre
www.ucl.ac.uk/medicine/amyloidosis/nac (United Kingdom)
www.amyloidosisresearchfoundation.org (United States)
Amyloidosis Support Groups
www.amyloidosissupport.com (United States)
National Organization for Rare Disorders, Inc.
www.rarediseases.org (United States)
NORD Rare Disease Support Community
www.inspire.com/groups/rare-disease (United States)
Associação Brasileira de Paramiloidose
The Canadian Amyloidosis Support Network, Inc.
The Transthyretin Amyloidosis Outcomes Survey (THAOS) is a resource you can turn to when you may be faced with TTR-FAP. This international disease registry is overseen by medical experts in amyloid diseases.
The purpose of THAOS is to help you better understand TTR-FAP and what causes it. Ask your provider for more information or visit www.thaos.net.
Financial support for the THAOS Registry has been provided by Pfizer. The THAOS Registry is overseen by a scientific board comprised of scientific and clinical experts in the field of amyloid disease, including Pfizer representation. Pfizer is the legal owner of all survey data, and may use the data for purposes including regulatory submissions.